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OCALI is pleased to provide a monthly update on current research and study outcomes from an array of professional publications.
If you have any questions regarding this information, please contact:
Melissa H. Bacon, OCALI Program Director – Policy and Interagency Collaboration
470 E. Glenmont Ave. | Columbus, OH 43214 | (614) 578-6630 (cell)
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OBTAIN NEEDED SERVICES
Pickard, K. E., Wainer, A. L., Bailey, K. M., & Ingersoll, B. R. (2016). A mixed-method evaluation of the feasibility and acceptability of a telehealth-based intervention for children with autism spectrum disorder. Autism. doi: 10.1177/1362361315614496.
28 parents of children with ASD used an interactive, telehealth program that teaches parents to promote their child's social communication in routines and play. One group met with a therapist for 30 minutes twice-weekly over Skype. The other group used the interactive, telehealth program only. Results were:
- Parents in both groups reported positive experiences with their own competence and their child's social communication skills.
- Parents who had a therapist found the therapist essential; those who did not have a therapist, thought that a therapist would be helpful.
- No differences between the two groups' perceptions on: (a) acceptability of the intervention, (b) burden on the family, (c) frequency of program use, and
(d) child progress.
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OBTAIN NEEDED SKILLS
Albright, K., Barnard, J., O'Leary, S., Federico, S., Saville, A., Lockhart, S., Lee, M., Eblovi, D., Dickinson, M., Kile, D., & Kempe, A. (2016). School-based health centers as medical homes: Parents' and adolescents' perspectives. American Pediatrics, 16(4), 381-386.
30 Spanish-speaking and English-speaking parents and 62 adolescents were interviewed regarding school-based mental health centers (SBHC). Parents and adolescents reported:
- They were satisfied with the quality and use of SBHC services.
- SBHCs were highly accessible and family-centered.
- Many students preferred SBHC over PCP because of (a) trustworthiness,
(b) compassion, (c) care coordination, (d) comprehensiveness of care,
(e) continuous care, and (f) high quality of care.
- Some Spanish-speaking parents reported that communication could be improved.
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DEVELOP THE SKILLS TO SUCCEED
Turcotte, P., Mathew, M., Shea, L. L., Brusilovsky, E., & Nonnemacher, S. L. (2016). Service needs across the lifespan for individuals with autism. Journal of Autism and Developmental Disorders, 46, 2480-2489.
3,340 caregivers of individuals with a Medicaid reimbursement claim associated with ASD in Pennsylvania completed a survey. They identified the largest unmet needs:
- Adults: (a) speech/language therapy, (b) occupational therapy, and
(c) social skills training.
- Middle/high school students: (a) social skills training, (b) occupational therapy, and (c) one-to-one support.
- Elementary school students: (a) social skills training, (b) occupational therapy, and (c) neurology services.
- Preschool students: (a) social skills training, (b) neurology services, and
(c) physical therapy.
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STRENGTHEN SUPPORT ALONG THE WAY
Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use. Autism, 1, 106-115.
244 parents were asked about their child's autism and services. Parents were divided into two groups: low socioeconomic status (SES) and high SES.
- Parents of both low and high SES understand their child's basic ASD needs.
- Low SES parents needed more information about services, including home-based services.
- Low and high SES parents both experienced barriers that included:
(a) finances, (b) limited information/knowledge, (c) parent schedule, and
(d) waitlists.
- High SES parents used ASD services because they were more knowledgeable about services.
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STRENGTHEN SUPPORT ALONG THE WAY
Levy, S. E., Frasso, R., Colantonio, S., Reed, H., Stein, G., Barg, F. K., Mandell, D. S., & Fiks, A. G. (2016). Shared decision-making and treatment decision for young children with autism spectrum disorder. American Pediatrics. DOI: 10.1016/j.acap.2016.04.007.
20 parents of children with autism and 20 clinicians reported the following about medical home:
- Pediatricians have knowledge gaps about ASD treatments and community resources.
- The role of pediatricians in shared-decision making and treatment is ill-defined.
- Use of complementary and alternative medical (CAM) treatments created conflict between parents and physicians. As a result, parents may pursue these treatments without discussing safety and efficacy with pediatricians.
- Limited discussion regarding treatment choices occurs between pediatricians and parents.
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