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Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., ... & Zwaigenbaum, L. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism, 1362361316633033.
283 parents completed several measures when their young child was diagnosed and 2 years later. They found the following:
- Child externalizing (such as aggression) behaviors were related to parent stress.
- Parent stress was also related to insufficient personal and social resources.
- Lower parent stress occurred when they used active strategies (such as problem solving, getting help) instead of disengaged coping strategies (such as distancing self, avoiding problems, becoming emotionally negative).
Recommendations include: teaching parents to use active coping strategies and self-regulation skills and teaching young children self-regulation skills.
Zuckerman, K., Lindly, O. J., & Chavez, A. E. (2016). Timeliness of Autism Spectrum Disorder Diagnosis and Use of Services Among US Elementary School–Aged Children. Psychiatric Services, appi-ps.
The CDC's Survey of Pathways to Diagnosis and Services was used to assess the experience of 722 children with ASD between the ages of 6 and 11. Findings were as follows:
- Parents were first concerned about their child when they were 2.1 years of age.
- Parent received a diagnosis for their child when they were 4.4 years of age.
- Child services included: (a) school-based therapy (79%), psychotropic medications (49%), behavioral intervention (32%), and complementary and alternative medication (CAM) (16%).
- Children whose delay time between parent concern and diagnosis were less likely to use ASD-related therapy services and more likely to take psychotropic medication and use CAM.
- Nearly 1/2 of children who were 4 years of age and older did not receive school-based therapy and over 50% did not receive behavioral intervention.
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